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Hi Ruth,
What can I say, 9 years of great health, I'll take it. My PNH as of now, is considered moderate. My only symptom is fatigue. For now, I'm okay without treatment. However it is thought to be progressing, and I will have my clone size checked again in August. If it continues to expand, Soliris is the recommended treatment. I am in no hurry to start this drug. It is unbelievably expensive. All things considered , it could be worse.
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