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Old Thu Aug 17, 2017, 08:41 PM
majorindy majorindy is offline
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Join Date: Jul 2017
Location: Indianapolis
Posts: 8
ASXL1 and TET2 Gene Mutuations

Anyone been diagnosed with these two gene mutations. If yes, how long ago and your present status. My present diagnosis is MDS Low Risk but everything I read about these two mutations point to a much shorter survival time. Seems puzzling to me that they say get a blood test every three months when it appears things could change quickly.
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