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I was diagnosed with MDS in 2010, but did not go forward with transplant until February 2014. In the time prior to transplant, I did not really have any temperature regulation issues, but have had them ever since. My feet can go from freezing cold in the way they feel and to the touch, to burning hot within a few minutes.
As for your husband's situation, I have read many posts about undiagnosed fevers, usually associated with low white blood cell counts. I think you might see it listed as neutropenic fever.
I hope that the Vidaza helps stabilize his counts and provide him with some relief from the temperature fluctuations.
Dan
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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