[rainbows and glitter]

Ok, I have mds and I have a rare genetic mutation called GATA2 that causes me to not have any monocytes in my blood. I also have a few viruses on board that complicate things. My doctors want me to have a bone marrow transplant this summer at the NIH. They say I need an escort/caregiver, what will be expected of this person? Will they be bathing me? If I only get chemo for five days or whatever like the websites say will my hair fall out? Am I gonna be so sick the whole time I just sleep? I don't know what the heck to expect and the correspondence from the transplant team so far is not cutting it for my over reactive imagination. What about my home? How am I gonna pay for my things here when I'm over there in a hospital? They told me on their protocol they haven't lost any one yet...is that baloney like what are my risks here seriously? I still work and everything I know my problems have been getting worse but this seems dramatic...they said though that there's no blasts and I am in good shape for the transplant AND they found multiple matches even though I am Alaska native Caucasian mix. So I am freakin out....