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Hi rainbows and glitter,
I'm sorry if I didn't make myself clear. My husband did not have a transplant. He was in-patient at NIH for 2 weeks in 4/09 in a Campath clinical trial. He has also been on Cyclosporine through them and the latest trial was for Promacta.
I was just trying to give you a perspective on NIH as a whole and to try to reassure you that they not only can be trusted, but they are the tops in their field of Hematology.
I also wanted to encourage you to be bold about asking any and all medical questions that you might have. They have always been extremely responsive to us.
I know this is all scary to you - being so far from home, needing to keep things going while away - and then the fear of what you are going to face with the transplant. But in my opinion, you couldn't be in better hands than at NIH.
Please feel free to ask me any questions regarding NIH. I will be glad to try and answer them.
Take care and God Bless,
Sally
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