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Old Tue Oct 9, 2012, 10:06 PM
teo teo is offline
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Join Date: Oct 2012
Location: Johor, Malaysia
Posts: 117
Hi Hopeful & Brigitta-A,

I found another hematologist in another private hospital (3rd specialist hospital) that has clinical focus on MDS. I hope he is the right person for 3rd advice. My sister is arranging to meet the doctor soon.

When i found the info above, only then i understand what is the differences between hematologist with not MDS clinical focus and hematologist with MDS clinical focus. As you all mentioned, we need to consult the MDS experts.

About both of your suggestions & advices, i will definitely ask my sister to consult the doctor again.

Hi Brigitta-A,

Actually my mom has two BMB, as the first one was with the goverment hospital, i dont know why they dont allow us to even photocopy the test report, the 2nd one is from the specialist hospital which saying my mom was diagnosed with MDS and when my sister asked which type of MDS, the doctor says RA.

I know we need the 3rd or maybe 4th one to find out whether my mom really has MDS or not as so far, all the tests done by the specialist is not really convincing after discussed in the forum.

I will send MD Lay-cheng Lim in singapore a mail first, let see what he thinks about my mom case.

I truly appreciate all your good informative info and advices. I will update you all with my mom latest results maybe few more weeks from now. Thanks to all the people that helping me to get through all/most of my difficult time with knowing about MDS. Thanks again folks.
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Teo, son to Goh, age 71 dx mightbe MDS with low HB & RBC Jan 2012; FE 7755 on Nov 2014 - 6*500mg ferriprox; BT every month since Feb 2012; BMB done July 2013 - no conclusive evidence of MDS or PRCA; EPO stopped Nov 2013; Danazol 200mg*2 starts Nov 2013 + cyclosporine 25mg*4 starts June 2015

Last edited by teo : Wed Oct 10, 2012 at 06:46 AM.
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