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Ray,
Sorry to hear about the current challenges you are facing. Prednisone has a lot of side effects, but is pretty good at knocking down GVHD in most cases. Your doctors might also look at Budesonide (Entocort) for the gut issues, this worked within a couple of days for me when I started taking it. The doctors may favor prednisone if you have GVHD in multiple locations as Entocort is more targeted to the gut.
As with Dave, Bailie, and Cheryl, I am sending my best wishes for your recovery.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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