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PattiDean; Some more words of hope. My husband was diagnosed with MDS when he was 76. He will celebrate his 81st birthday in October. Granted, all three blood lines were not affected for him. He has been very fortunate but he has only had supportive treatment, EPS, specifically aranesp shots every two weeks. His HgB runs between 9.5 and 10.3. He has gotten weaker over the past 7 years and sleeps a lot. Since you are in your mid-70s, I thought it might help to know of another senior citizen who is still surviving. I agree with the other posts. Not a fun disease and we all can relate to the fear. Do find a doctor you like, trust, and who will talk to you.
Joan
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Joan, wife of Don, 80, diagnosed MDS-RCMD 2006, on 300 mg Aranesp every 2 weeks. Only RBC affected by MDS.
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