Birgitta,
It does give us hope that a drug/s can be found to at least put bone marrow diseases into a chronic stage. A drug that doesn't have bad side effects and gives people a wonderful long quality of life. If this drug can do this for me, there is no reason to think that another drug can't be found to do the same for so many others. I only wish they were able to find out why it works so well for me, which hasn't happened yet.
Cheers,
Lynn
Quote:
Originally Posted by Birgitta-A
Congratulations Lynn  ! Your good response gives hope to us - perhaps we will find a drug that will help us too.
I am now taking Thalidomide 50 mg/day and Prednisone 20 mg/day for my severe fibrosis. My RBCs and platelets are increasing but the WBCs have been decreasing so I take 3 Neupogen injections/week instead of 2.
Kind regards
Birgitta-A
71 yo, dx MDS Interm-1 May 2006, transfusion dependent, Desferal and Exjade for iron overload, Neupogen 3 injections/week for low WBCs, Thalidomide 50 mg/day and Prednisone 20 mg/day for fibrosis |