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Old Tue Nov 22, 2011, 01:16 AM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Hi Misscakes. I'm not a hematologist but in my opinion your counts leave you in danger and you owe it to yourself and your family to get appropriate treatment, now not later. If there's a reason the doctors want to wait despite your low platelets, it's certainly not clear to me why.

If you can go out of state you might consider a consultation at the Mayo Clinic in Jacksonville (see Treatment Center Map). It's hard to beat the Mayo for expertise in both diseases.

I would also contact the Aplastic Anemia & MDS International Foundation to get detailed literature about both diseases and any other information or referrals they can give you.
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