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Old Mon Jan 12, 2015, 04:13 PM
Chad S Chad S is offline
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Join Date: Jul 2013
Location: Dallas, Texas
Posts: 17
confused by illness 18 months post BMT

Danielle has been very ill for almost two weeks now. She is 18 months post transplant and we went to her doctor today and her counts are still normal. However, about a month ago she started having a severe ache/pain in her right side. About two weeks ago, just as that pain started to subside she began having a pain in her neck around her lymph node and then not surprisingly became ill. After 3 days of not getting out of bed she developed a low fever and we took her to the ER. A CT Scan showed a "small infection" in her lungs, so she was given antibiotics and sent home. She took the antibiotics for the 5 days which ended 5 days ago. She only got worse and last night threw up and could hardly move. She threw up again this morning so we went to see her hematologist and after seeing her counts were ok, he sent us home with a new antibiotic and said if she didn't feel better in a week that he would do further testing. They did give her some IV fluids since she hasn't eaten much in many days and had thrown up.

I am confused and worried. She has been in bed for the most part of 12 days now. Has complained of sore throat, severe ear ache and head ache, upset stomach, nausea and extreme fatigue. Also, my kids and I are around her all the time, but none of us have any symptoms of whatever illness they are treating her for.

Could this be GVHD? Or is this just what we should expect from now on when she gets a cold or flu?
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Chad, husband of Danielle age 39, diagnosed MDS (RAEB-1) Feb 2013, BMT May 2013
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