Similar story
Hello, Rosemary, Glad to meet you, this is a great site for those with similar diseases and stories to come together. Like you, I have found a successful treatment (Dacogen) since first diagnosed in summer of '09 and have been able to lead a normal life since. Certainly one has a new outlook on life, enjoying every little thing every day! Great that you have support group and volunteer job! My husband keeps abreast on the latest research, such as the webinars you mention, and that new drugs and applications are on the horizon!!! Read a wonderful quote recently, "If life hands you a bitter pill, it may turn out to be the very medicine that will make you strong." Take care and hope that everyone on this forum will find their "miracle" drug and/or combinations for these bitter diseases!
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66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3.
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