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Many useful suggestions...
Hi Kensley: You have found the BEST forum for helpful suggestions and support. For me it took a good six months to get up to speed. Lots of reading and taking some other forum postings and on-line websites with "a grain of salt!"
One additional suggestion is to keep a handy record of CBC results, medications and transfusions, if any (donor dates & amounts infused). Also really helpful to take it along to your doc appointments or in-patient treatments. 
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%  ) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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