Hi Helen, tytd, and Birgitta
My response to Promacta seems to be holding, my platelets have improved to the 20's. I've been on Thalidomide for 10 weeks and the last 8 weeks have resulted in an increase in my Hgb from a low of 4.5 eight weeks ago to 6.4 on 9/2/09. The trend in the Hgb and platelets is encouraging.
We are increasing the Promacta to 75 mg/day. So far I've had no noticible side effects from the Promacta, I take it after midnight during a bathroom run.
Blood tests show normal renal functions.
I hope all of you are doing good in your fight against MDS.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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