Thread: bleeding
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Old Sun Sep 30, 2007, 09:52 PM
Linda Linda is offline
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Join Date: Sep 2006
Location: Goldsboro, NC
Posts: 67
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30 Sep. 07

Yes, he gets Arenesp every other week as needed, which is every other week now. He used to get them every once in a while. The Doc now is concerned about his counts. WBC 1.4, Granucites 0.1. He gets Neupogen daily, and no results lately.

We talked today and he is supposed to get a porta cath put in. Bob is going to ask if Doc wants to do a BMB at the same time, ( he won't feel it ). I feel that we need to know what is going on in there.

He was supposed to have Dacogen cycle 2 last week. He and his other Doc in Winston-Salem decided to take the treatments unless he is too sick, no matter what the counts. I don't know how he will do with the second round when he is well enough.

So far this time he was in the hospital twice. The first time for almost 5 days, for a fungal infection in his throat. This time he has just passed 10 days for pneumonia, and an infection in his blood. He has really been a trooper, not getting too impatient.

Thanks for this forum!! You are all in our prayers!
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Linda, Wife of Bob, dx REAB-1 19 Jan. 06. Beginning numbers 19% blasts, Vidaza for 10 cycles then stopped responding, as of Apr 07 REAB-T Blasts at 20 (AML). 2 cycles of Dacogen May and June, 3rd in Sep. Counts bottomed out (WBC and Plts). BMB in Oct. showed blasts at 51%. NC

Last edited by Linda : Mon Oct 1, 2007 at 07:05 AM.
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