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What else is going on and what has been ruled out? Are all your counts dropping or just red cells/hgb? And are you getting red cell transfusions.
Once you get all your tests results back, you should consider getting a second or even third opinion.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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