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What's your FE running now? And, do you know what it was before you started to get transfusions. That's a good baseline to have. If your iron was high prior to SAA, then getting the excess iron off would be a priority. Even though they say it takes 10 years for excess iron to effect you, I think it impacted John within 5 years. Especially his endocrine system. It all really depends on where you body is storing the bulk of it and how well those organs can tolerate it.
It's taken forever to get John's iron down. He's close to normal. A few more phlebotomies and I think he'll be able to stop.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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