Quote:
Originally Posted by Ryan Jay
The doctor told me that he would like to at least hold my iron levels steady until my counts come back up.
Unfortunately high iron levels run in my family, aplastic anemia notwithstanding; so I'm getting a double hit.  |
Hey Ryan,
I, too, was wondering what your serum ferritin is? Mine is at 1415 right now and doctors at Dana Farber suggest not to treat. It seems its very controversial whether to treat or not, so we're sitting tight and just watching it.
Luckily I only get RBC transfusions 2-3 months cuz who knows where these levels would go if it were more frequent.
How is your platelet level doing? Hopefully on the rise. Good luck!