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Old Thu Oct 10, 2013, 03:06 AM
StephM StephM is offline
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Join Date: Oct 2013
Location: France
Posts: 19
Thanks for your answers.

RelentlessAgainstSAA: He was taking prednisone after ATG and they stopped afetr a few days and that's when serum sickness started. He is now back on prednisone but I don't know the dosage. I phoned him this morning and he is feeling a little better. He ate a slice of bread.He hasn't eaten for days! He has "primperan" to prevent nausea
I'll ask about Prednisone next time.The hospital is quite far away from home and I try to go as often as I can but I can't go everyday.
Apparently the WBC is rising a little. (around 1000. It was 100 a few days ago)

Hopeful:He weighs around 75kg and he told me his cyclosporin (Neoral) was reduced to 0.75ml (and no longer the 100mg tablet he was taking twice a day)
I will check that too. It seems to be a low dosage compared to what I read in the forum.
Glad you like France. My greatest dream is to go to California!!

NLJabbari:thanks! I'll ask the question about PNH clone. His urine was almost black a few days ago. Very impressive.

Thank you all! It really helps!
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Steph, 25yo brother diagnosed with AA July 2013. Horse ATG Sept, currently on cyclosporin
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