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Old Thu Oct 10, 2013, 04:33 AM
SAA Sister SAA Sister is offline
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Join Date: Sep 2013
Location: Sydney, Australia
Posts: 2
Hey Steph,

I'm so sorry to hear about your brother, just wanted to say as I was reading your post I couldn't help but say something because it sounded exactly like what has been happening to us. I'm new to this too and have been doing so much reading these past 2 months since my brothers diagnosis, only now have I started to post!

My brother has been taken off the cyclosporine for a few days because of his kidneys, we're hoping after his tests tomorrow we are able to recommence but on a lower dose. Still not sure if that's a good thing because we had just got it to the right level in his system and I wonder what will happen if we can't get it back there. We're from Sydney, I haven't found many Australians going through this, so I don't know what we would do without these forums!
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Caroline, sister of Marco age 30; diagnosed SAA Aug 2013; treated with ATG Sept 2013; 10/10 MUD BMT Dec 2013; currently on cyclosporine.
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