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Old Sun Feb 28, 2016, 07:06 AM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Hi - great news about the marrow - are you still taking Vidaza? Pentamidine? (they give me this to prevent some kind of pneumonia. The heart thing is strange - do they know what caused it? Could that also have been some kind of infection? Do they think it was related to transplant? Funny concept having some kind of illness completely unrelated to marrow or transplant...

Hope you keep doing well and get back on the golf course soon.

Best,
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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