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Hi Roger,
I'm probably not the best person to answer this but, I think my haematologist said that if or when I decide to try the 6 cycles of Vidaza and it doesn't work then it would be time for BMT.
This doesn't mean it is the usual protocol because I have learnt that there is no "usual" with this disease. I think it depends on a lot of factors including transfusion tolerence, blast %, risk of transformation etc.
Good luck with your results. Please post them when you get them, they will help with the decisions I have to make as well.
Keeping my fingers crossed for you.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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