[Susan]

Thanks Hopeful! If I stay local and don't feel well when I'm released I can just go home get in bed. Now I have to cross my fingers and hope it's AA and nothing worse. I never thought I'd be wishing to have AA.

Are you doing well? I hope so.

Wow, I hadn't considered I'd be handed off to the nurses. I do know to have multiple doses of Demerol ordered and ready for rigors.

Right now I'm using a relatively small close by facility since I get PNH Soliris infusions each 2 wks, a quick trip. It's pretty good, so is the specialist but she does mostly cancer. They only have 1 critical care pulmonologist on staff though. If I got say a lung fungal infection the larger center would have someone in an emergency for sure. Ha, thinking out how to handle any worst case scenario. So I'll likely go back to all care at the larger hospital until more stable since I'd get ATG there.

On the other hand I'm not certain I want resident and fellows determining my care. Suppose I can demand to see the attending as needed if I feel they're not involved enough.