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Welcome!
Hey Lindy!
It's a great bunch in here; hang around and you'll learn all kinds of stuff. The good news is, there are new therapies for MDS and other bone marrow failure diseases now -- and more being developed.
I've had borderline low platelets (low 90s, high 80s) for 15 years and did absolutely nothing about it, to no ill effect.
After being diagnosed with MDS (low Hgb and Platelets) in March 2010, I did exactly what you have started to do: read and learn absolutely everything I could about the disease, including meeting and corresponding with all the great folks on marrowforums.
Have you had a bone marrow biopsy (BMB) yet?
Take care! and Welcome.
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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