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Old Fri Nov 26, 2010, 12:13 PM
Lisa V Lisa V is offline
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Join Date: Aug 2006
Location: Waimanalo, Hawaii
Posts: 401
Welcome, Lindy!

I can certainly understand your reaction to the news after having gone through that experience with your mother. You definitely want to keep an eye on that and push for an official diagnosis. It may not be MDS. Only a bone marrow biopsy can tell for sure.

In relative terms, though, Plts at 100k are still pretty good, and should cause you no problems in daily life. We celebrated when my husband's Plts finally got that high (up from a low of 4k)! As his doctor said "You can do brain surgery at that level". Might something else be going on to cause the bruising issues? We didn't start seeing that until Ken's got down around 10k.
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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