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Old Fri Apr 1, 2016, 01:28 PM
kyis kyis is offline
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Join Date: Jun 2013
Location: Marin, California
Posts: 56
No Transfusion?

Well I did my cross and match for transfusion, but I was doing some pre transplant bloodwork yesterday (31st) and my hgb was up and I was feeling a little better, so I cancelled my transfusion.
So it appears things are getting better?, but I never trust this cancer and its next move.
Is this good or bad or who knows?
Do we want to see a drop in counts to show that it is working?
I hope to get another test Monday, but may put off if feeling even better.
Is it common to continue to have headaches?
Now wondering if to stay or change dosage and days (running at reduced)

I also found out yesterday that my match may still be available.
Not only a 10 of 10, but they also noted 2 other pluses, which I had never heard of. Actual blood type match helps, who knew? and also a match for CM negative. They should call it 12 for 12? This is great news.

Thank You to Everyone.

I cut and pasted from earlier post with adds.

HCT, Hgb, MCV, Platlets, Rb, rdw, wbc
11/9/15 MAN DIFF 26.7 8.9 120 54 2.22 14.5 0.5
12/16/15 MAN DIFF 28.3 9.6 119 61 2.37 14.5 0.8
1/19/16 MAN DIFF 26.5 8.9 119 40 2.23 14.7 0.4
2/9/16 MAN DIFF 25.9 8.9 118 55 2.20 14.7 0.8
2/22/16 MAN DIFF 22.7 7.7 119 52 1.91 15.1 0.5
2/26/16 MAN DIFF 21.1 7.1 121 46 1.75 15.2 0.7
3/4/16 MAN DIFF 21.3 7.1 121 48 1.76 15.0 0.8
3/9/16 MAN DIFF 20.5 6.9 120 56 1.71 15.0 0.5
3/13/16 MAN DIFF 29.3 10.1 107 45 2.74 25.0 0.6 After 2 unit transfusion (day before 1 shot)
3/28/16 MAN DIFF 22.4 7.5 108 45 2.08 21.9 0.5 Day 14
3/29/16 Felt probably my worse. Headhaches, fatigue just wierd
3/30/16 MAN DIFF 21.2 7.3 107 41 1.98 xxxx 0.6
3/31/16 24.4 8.4 110 48 2.23 25.4 0.5
4/1/16 Decided to wait on transfusion
__________________
Male 56, MDS 2008, pre SCT Hypocellular 5-30%, Normal Cytogenetics. WBC 500, anc 45, Blasts 15%, Platelets 45, HGB 7, RBCC 1.71, HCT 20.5, MCV 120. Became Transfusion dependent 3/2016. 5 cycles VIdaza started 3/14/16 which reduced Blast counts. . Marrow Transplant 9/1/16, Hereditary MDS/AML.
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