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After 8 wks ATG.. Dr pushing BMT
Would anyone pls share w us their experience w ATG response at 8weeks?
My husbands only sign of change is that he hasn't needed platelets in 4wks but they are at 18.
Bc he is still needing blood every 2 wks his Dr thinks the ATG is not going to work and in 2 more weeks wants to get serious about a BMT.
I am so sad bc there is no way to know if that will be a good decision or not until it's done. That scares me 
Any thoughts appreciated.
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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