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Old Tue Apr 23, 2013, 08:55 PM
Snuuze Snuuze is offline
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Join Date: Sep 2010
Location: Rio Rancho, NM
Posts: 50
2 months seems really soon to me for a response. I waited for the 3 month period to pass, the 6 month period to pass, and finally after 8 months it was as if the switch finally got turned on. BMT wasn't an option for me, but I sure got tired of going in for transfusions every week or less. The thing about this disease, as you probably already know, is that everyone's response time is different. If we expect to respond at the short end of the time frame, we can set ourselves up for frustration and/or disappointment.
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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