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Thank you all so much for the responses! Means a lot to us! It helps us to refocus on getting a plan B , to see if there even is a plan B (his sister was already ruled out) list the pros/cons and remember how different each persons response is.
His Dr called us back and said his CsA level is low and to take more. So maybe that's a good sign that he hasn't needed platelets in 5 wks w the level he's taking and taking more will help his counts?
This is all very confusing about wich path to take. Thank y'all for the responses and support
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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