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My two cents....You are better offer doing your treatment with a doc who has experience with SAA as well as a hospital that very familiar with it as well. I've seen too many mistakes happen when people are treated by someone with no experience with the disease. They don't know what to expect and therefore are slower to respond to things that come up during and after treatment.
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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