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Old Fri Aug 22, 2014, 08:16 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Alcof,

Just make sure if you engage hospice that it's not the same as palliative care. Not all hospices do palliative care. There are distinctions and sometimes they get lost during these times.

And, if you choose to add in supplements, there are forms that are better to use than some of the ones doctors usually prescribe/use. You can always check back here when you find out his nutritional status. You may want to ask the doctor for copies of the blood test. They should have checked his B12, folate and iron early on and so it may be helpful to get those results now. And just know, the blood serum test for B12 and folate are not definitive.

My husband's journey was a long and difficult one. He had one foot in the grave more than once and when he was discharged from the hospital, he was getting red cells twice a week and platelets 2-3 times a week. And he was neutropenic.

It takes time to recover from the infections and toxicity of the antibiotics. Both take a toll on the bone marrow. Lots of baby steps.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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