Quote:
Originally Posted by Marlene
Wonder if Danazol would be an option. It's a synthetic androgen similar to testosterone and has been used in SAA. If you search on it on this forum you'll find a few people who participated in a clinical trial. I can't remember if it was for AA or MDS though.
http://www.ncbi.nlm.nih.gov/pubmed/21279356 |
Danazol has definitely helped me. PRCA only affects red cells, but Danazol is now the only med I take.
"Greg H" on these boards has written many very good postings about it. There is also a poster with AA and a TERC mutation who has had success. I'm sorry, but I've forgotten her name. If you search the member list for Greg H you can see all his posts. He writes for a living, so they are among the best on this site.