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Thanks for your reply Hopeful. I had ATG mid November of 2012 and only required 1 rbc transfusion and 2 platelet transfusions post the ATG - my last transfusion was the 23rd of November 2012 so I responded very quickly. My doctors started tapering cyclosporine about 6 months post the ATG.
The interesting thing is that about 14 months post the ATG my plt count started to taper as well albeit it always remained within the normal range. From February 2014 my plts virtually dropped by 10 each month but all other counts remained steady. February 2014 Plts were 240 and by November of 2014 they were 180. By February 2015 they were 130 and now 31. As such I do wonder whether it is simply a case of finding the right level of cyclosporine for me and that the combined drop in cyclosporine and stopping the birth control simply triggered the fall.
Unfortunately we had not been tracking my cyclosporine trough levels.
I also have a small PNH clone.
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