Thread: Nutritionist?
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Old Tue Jan 31, 2017, 06:11 AM
Cheryl C Cheryl C is offline
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 830
I did a lot of investigating of natural therapies when I was first diagnosed with RAEB2 and was needing a transplant. The most hopeful was a hospital in Germany where complementary medicine is used, along with conventional medicine, to treat patients before and after transplants. Unfortunately I've lost the email I sent and received from one particular hospital, but here's a link to a group of treatment centres - Very expensive, as you can imagine!
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. On watch and wait since Feb 2012. IVIg 5-weekly. BMB Feb 2014 - no blast transformation. 2018 still stable.
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