The old Welshman
I'm 79 and have had MDS since 2003, I have no idea what any of my counts are and I don't want to know. The only thing I check is my crt level and my ferritin. I get 2 units of packed red cells evey 2 weeks, some times 3 based on my crt level. I inject my self once a week with 40,000 ML of Procrit, I take 500 MG of ExJade every day for the iron overload. I worry more about the iron than I do the MDS. Not much I can say to help you, I live every day to the fullest I can. Fatigue is my biggest problem, lose energy very fast. I can tell that you love your father very much, give him all the love that you can. It is a crazy condition, I know several people that have gone into remission for a few years. Pray and hope, stay has positive has you can, don't give up hope
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 82  yr. old male. Diagnosed in 2003. Started Blood infusion 1/5/2004, average of 2 units every 2 weeks. Inject Procrit weekly 40,000 ML. I have had 344 units of PRC . E Mail leojean@comcast.net
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