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Thalidomide and Exjade
Hi Ziad,
You are right about Thalidomide and neuropathy - I can only take a very low dose, 50 mg 4 caps/week, because Thalidomide decreases my white blood cells. Then the risk for neuropathy is low.
Many patients receive Revlimid, that doesn't give neuropathy, but Revlimid often causes low platelets. Like Thalidomide the drug should be given in combination with Prednisone or a similar drug for best response.
When your father's ferritin value is 1050 he doesn't need Exjade or any other drug for iron overload. It takes years for the iron to damage the liver, the heart and other organs. When I got blood transfusions every week my ferritin value was 5600 though I got Desferal and a low dose of Exjade (500 mg/day because the drug decreased my white blood cells). My liver tests have always been OK and I don't think the iron overload has cause so much damage. I have not got blood transfusions since Sept 2010 and my ferritin value has very slowly decreased to 866.
Kind regards
Birgitta-A
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