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Old Wed Dec 23, 2015, 06:28 PM
rar rar is offline
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Join Date: Mar 2014
Location: colorado
Posts: 215
Even when there is a trend it may be difficult to make sense of. I had platelets of 70 +/- 10 for 12 readings over a 3 month time frame. Then in 2 weeks I had a doubling in platelets. I had 140 +/- 10 for 8 readings over a 2 month period. My 3 oncologists could make no sense from it and say at least platelets are close to normal.

A year and a half ago after 2 months on an experimental drug oh a phase 1 trial my blasts went from 14% to 1%, WBC, RBC, and platelets were still all critical. 3 oncologists had the same advice. I was in very good health, blasts were under control, anything other than a transplant is only temporary, do the transplant now. It was about 3 weeks to the transplant. MDS appears to be cured with a few speed bumps in the meantime. I still on immuno suppresents and some residual GVH. I received good advice from my doctors. If you have confidence in them listen to your doctors.

Ray

Last edited by rar : Wed Dec 23, 2015 at 07:30 PM. Reason: addition
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