Dear Krista, I want to thank you for sharing your feelings. My Son Stephon age 22 was diagnosed with AA in February 2008, then PNH last month April 2008. when I saw your age I said oh I must read what she wrote. I joined this group to learn more about my son's illness, and also to understand what he is going thru. My son barely communicates with me, I was there with him during his month's stay in the hospital and expected that when he came home that I would be there during his treatment every step of the way, but to my surprise he has shut me out. Maybe my nurturing upsets him, but as a mother I would jump off a cliff for him. I'm not trying to make his illness about me, I just want to be here for him. And I feel he won't let me. Hopefully his resistence to make me a part of his treatment will pass. Thanks again for sharing your feelings. As a matter of Fact I appreciate everyone here, I have been surfing thru and learning how to actually use this site. I'm getting there.
