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She is on growth factors for both white and red. She is on Leukine for the white blood cells and Aranesp for the red. Her doctor said the ATG didn't work and that she doesn't want to do the 2nd one incase she wants to pair it up with the bone marrow transplant.
The doctor said there is no other option and that we need to do the transplant. She'll die without it. It seems from what I read it is fatal without a transplant.
Her energy and physical levels aren't normal. If she even goes shopping or to the mall, she is wiped out for the whole day. It's like her quality of life is so low and I can't imagine her never being "normal" again.
I guess I'll just have to keep an eye on her levels and see what they do in the next few weeks.
Neil,
Thanks for the format. I actually set up an Excel document and have it all neat and easier to read than I posted it.
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Guardian and Caretaker of my 14 year old sister with SAA;Diagnosed Oct. 2007-1 ATG/Cyclosporine treatment-10-07:Waiting on Bone Marrow Transplant-it's down to 2 potential donors;Now it's changing to early MDS-pre Leukemia.; She has now moved with our other sister to see a new dr in Nashville.
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