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Old Wed Jan 14, 2015, 08:24 AM
kgtuck kgtuck is offline
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Join Date: Mar 2011
Location: Sylva & recently Waynesville, North Carolina USA
Posts: 47
Smile Dagogen regimen

Hello, again, Just wanted to mention that I was told when I got an opinion from an MDS specialist, "don't push the regimen too far". He said at the time, you can move it out to 5 or even 6, but to not go any farther. That was based on the info he had at the time (3-4 years ago). I know that my hematologist/oncologist that takes care of me is quite conservative, but I figure changing the regiment could be risky. My treatments weren't spaced out until about 2 years ago. And, yes. IV drip! This is not the type of disease that goes into full remission, like tumor type cancers where the tumor is removed and possibly all the cancer is gone. But the good thing is that the Dacogen has very mild side effects and you can go about a normal life, except for a monthly visit to chat with jen, amy, melanie, katie, etc.--friends that take care of me, and I stay for an hour (and share recipes and knitting patterns)! Best wishes to you!!
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66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3.
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