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Sue,
This sounds like a pretty positive progress report. No transplant happens without hiccups or obstacles in the road. I was in the hospital for about 30 days from beginning to end, and am pretty jealous of the people that are able to go home to an apartment and not have the nurses checking in on you every 4 hours interrupting sleep.
The medication issues, as Neil stated, is where the doctors earn their living. I have had several changes over the past few months due to drug reactions or undesired side effects, but we keep working at it and continue to find combinations that work for me.
Continued best wishes going forward!
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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