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Hello Lollie,
Welcome. I am glad you found us. You are so right, most folks have no clue what MDS is. For me, I think the hardest part is the medical expences right now. The fact that they will last forever for me. People kind of expect that I will get treated and move on. I don't know why that bothers me, just does. Silly, huh?
Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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