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Old Wed Feb 2, 2011, 07:48 PM
cheri cheri is offline
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Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
Question

Hi Susan--
What happened?
Have you tried any of the pharm companies who will pay for the medicine if your insurance won't? Have you tried your doctor's office/hospital social worker to intervene? Seems wrong that they won't pay for anything...
I hate to say it but it seems true--nobody cares if you live accept your family, friends and loved ones!
They reduced my Vidaza dosage, from 7 days to 5, because Dr and Hosp nurses don't want to work weekends!

How are you feeling and how are your #'s....?
I'll check in some of my books to see if there are any fundiing sites you can contact......
Hang in there.....
__________________
Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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