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No transplant?
Hello Susan,
Sorry to hear about your insurance issues.
I'm sorry if I have missed some other posts, but what about a transplant before the disease progresses to AML?
In MHO it seems odd to "watch and wait" when you have high risk disease and you are young enough for transplant.
I wish you all the best.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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