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First, find yourself a new doctor that knows what he's doing, your's apparently doesn't.
Sally C posted you a good contact at NIH.
Another good contact closer to you is:
Moffitt Cancer Center in Tampa
Attn. Jennifer @ 813-745-5413
Their head Hema/Onc is Dr. Alan List one of the developers of Revlimid for MDS.
Good Luck and we'll hang in there with you.
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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