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Curlygirl...interesting information. Thanks for posting it. I too wish I knew what I now know back when John was first diagnosed. Like you, I learned quite a bit by looking beyond bone marrow diseases. John had such severe neuropathy and as I researched it, found that many nutritional approaches for it were also applicable to bone marrow/blood disorders.
Cherly C...John's hematologist never tested for fibrinogen. Another doc did & said it was high, suggesting John blood was prone to clotting too much. That was back in 2008 and we did not pursue it at the time. They messed up a few of his blood draws causing some false results and other things were a priority at that time. Inflammation can cause the increase and John was dealing with really high iron at the time.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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