|
You ddnt say how old you are. I believe that PNH usually shows up in middle age/ approaching that time, and of course the symptoms vary greatly between ppl. I'm thinking that a bone marrow biopsy will determine your clone size. I wld also advise you to see a dr who is experienced in treating PNH. That makes a diff for sure since it is so rare. PNH dr's talk to other dr's who treat PNH, etc etc. My PNH developed slowly and got progressively worse the closer I got to 40. I then convinced myself that I was tired bcse I must be low on testosterone. That obv was not the issue!! I was nvr diagnsd until abt 6 mos before getting a trans. Good luck in your treatment.
|