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Old Wed Aug 19, 2015, 12:33 AM
JennyB16 JennyB16 is offline
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Join Date: Jul 2015
Location: South Florida
Posts: 4
Update-Good News

Hello Friends!

Just wanted to let you all know that it looks like we are seeing results from the treatment. My last platelet transfusion was 3 weeks ago today, and my platelets have slowly been going up on their own. Post transfusion I was at 35, then 19 about a week later. Then came the best news - my platelets had climbed to 24 by the end of week 2 and were 29 today! This is all just a little over 2 months post treatment.

A few weeks ago we were talking about putting a PICC line back in because of my frequent transfusions and blood tests (transfusions once or twice weekly with blood work 3-4 x's/week!). Now I've cut down on my clinic visits to twice a week and the dr's are very pleased and hopeful with the current trend .

I hope this offers a bit of encouragement to anyone that needs it - keep fighting this, you CAN beat it!

-J
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Jenny B, 32 year old mother of 2. Diagnosed with VSAA May 2015, H-ATG, Cyclosporine, and Eltrombopag clinical trial at NIH June 2015.
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