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Hi Tracey - thanks again for your prayers - you are in mine as well.
I'm not sure how long I'll have to be here - depends, in part how far you'd otherwise be from the hospital. At this point I'm going back at least three days a week - sometimes more. Its taking longer for my low dose of stem cells to get going. I think it varies for everyone - but I suspect I'll be here for day 100. My doctor may let me go for the weekend.
Someone I know who had a transplant went right home, probably against medical advice - but he was only 45 minutes from the hospital - I am a about 2 hours away. How far are you from the hospital?
All that said, I'd ask your doctor - also some (maybe most) transplant centers offer some kind of low cost or free lodging near the hospital.
Good luck - let me know if anything changes.
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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