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12 Years Post Transplant For Pnh
It appears that this forum has very few active patients or caregivers, but obviously there are a few of us left. Other than having to take Jakafi for chronic GVHD, I am fortunate to have very few other transplant related issues. I still have regular visits w/ the same specialist who has been treating me since being diagnosed in 2011. I know who my unrelated donor is, but I have never received a reply to my email sent a long time ago.
Here in Colorado, there are still some occasional news stories regarding Covid, but I have never contracted it. I still meet the occasional person w/ their Covid stories. May we never return to the Covid years! Happy holidays to all and good luck to any rare or non-rare blood disease patients who visit this forum.
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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